Nobody ever told me there would be days like this
Having a rough day. People talk about parenting their parents, but that really isn't a good description.
Although I never had the blessing of having a child, I do know that the experience is full of wonder and firsts. The first step, the first word, the first laugh, even the first poop, are all reasons for laughter and celebration.
But dealing with an elderly parent is all of those things in reverse. The last word, the last step, the last laugh.
It's been 5 or 6 years since my mother was diagnosed with Alzheimers. It feels like it has been a lifetime. And she is still relatively okay, compared to many of the other people in the dementia wing of the nursing home. She knows who I am and she doesn't talk to inanimate objects and she isn't hostile.
In fact, she is always thrilled to see me. Too thrilled, really. Even when she was in her right mind, I always felt that I was responsible for her happiness. She always wanted me to come see her and brighten up her day.
When she was in assisted living and still had her own phone, she called me non-stop. and I MEAN non-stop, because as soon as she hung up the phone, she would forget that she had called and she would call again.
Now she is in a nursing home and she spends at least 80% of her time in bed. Not because she is sick or HAS to be bed ridden. She just wants to be in bed. The only time she will get out of bed, as far as I can tell, is when I go see her. So again, the burden for her happiness and for any joy she has in life is on me.
And quite frankly, I can't handle that responsibility most of the time.
The depression associated with watching her deteriorate is oppressive. It weighs me down. I find myself on the verge of tears almost all the time.
I had my moods under control for a good two years, until this new thing came up. Now she is losing her eyesight. She knows she can't see well but her mind is past the point of understanding why. So I have to make the decision about whether to put her through eye surgery or not.
The doctors think the eye surgery is the best answer. If she loses her sight, they say, there is too much risk that she will fall and hurt herself.
Besides, seeing me, seeing the sky, seeing flowers, seeing other people smile -- that is about all she has left.
I had to take her to a cardiologist last week to get medical approval for the surgery. He said it is high risk, but he still thinks she should have it. Today I need to take her to have her eyes measured for the surgery.
All of these trips just make me want to cry. It's not easy taking her anywhere. And now with her vision going she just keeps asking me over and over if everything is dark or is it just her?
She's as gentle and sweet as can be right now. More than she has been in her entire life. Which of course, doesn't make it any easier. I feel sorrier for her. I want to help her. Want to protect her. And of course, I can't.
For the past 5 or 6 years I have gone to see her 2 or 3 times a week. But the visits are becoming more and more depressing and I don't know how to handle it. I don't know how to be a good daughter and keep going and not just lose every ounce of happiness that was once in me.
Will I get it back some day? Will this huge, oppressive dark weight be lifted from me at some point? I really don't want to take anti-depressants. And I don't want to have to rely on alcohol or anything else to numb my feelings. But I just don't know what the secret is to coping with something like this.
How do I not let the sadness overcome my own personality and affect all of my other relationships?










Betsy,
It is never easy to watch someone you love loose a part of themselves. I have gone through this with my Grandmother and I know I will go through it with my mother as well. From my limited point of view the only advice I can offer is “acceptance.” It seems to be a universal response to life events that we have no control over. Accept and know there is a higher power walking with you through every step. There is beauty in every phase of life. Sometimes the challenge is finding the beauty. I pray that you will find the beauty in all that your mother is going through. It will help both of you.
~Peace
David
for about twenty years I was a caretaker in my family…my mother lived with us and I took care of her daily until she died in 1990. Then I took over being the caretaker for my two aunts who lived next door to me. One died in January @ 97 having spent almost 8 years in the nursing home (which I would visit daily) and the other gal predeceasd her by a couple of months and she lived next door until she died at 87. The familial obligation was not as close as yours is with your mom, nor was there any long term dementia… but these gals really relied on me being there for them. None of my aunts had children so becasue of my proximity and sense of humor and patience ( I suppose) I was the ideal candidate to be their caretaker. Only you will kknow when you need some respite. If your quality of life and zest for love is beginning to dip, then you definitely need a time out. I guess David is correct when he tells you to accept what is, but the way I look at it, the higher power he speaks of is you. Be true to yourself…your mom's in good hands…give yourself a break now and then…and above all, don't beat yourself up with guilt. From the little I know of you, from your blogs…you're a person with a good heart. And that is the little piece of the world you should be most concerned with. Because if that damn spirit breaks down, you won't be of service to anyone. Peace, maze I apologize if this was too preachy like.
I just found you as a friend of Maze, and read your post this evening. The end-of-life stuff is hard, and sometimes its even harder than that. I think it's OK to realize that it is hard, and allow hard to be just that, sometimes. We don't have to fix it all, just be there. And I agree with Maze, stay on top of your love game, you need it for your mom, and for yourself. I come home, and allow myself to feel the pain, and the love. They both mix together into a song for me, and I hope for you, a bitter, yet sweet song of life. Every day with mom is a good day in my opinion. We're lucky to have um.
Thanks guys. I appreciate your support and I feel a lot better this evening. My day with my mom went pretty well. Much better than expected.
I added some photos of me and my mom to my photos here on Zaadz. Check em out!
Ahhhhhhh. Life.